Neurodiversity sees neurological difference as a natural part of human existence rather than a disorder. It recognizes its challenges and its gifts, and rather than seek to eliminate or "cure" neurodiversity, embraces it. This term is a friendly umbrella, compared to my specific diagnosis, Autism Spectrum "Disorder" (ASD); I prefer to say we are 'different' not 'disordered'. It's also called a spectrumĀ for a reason. Neurodiversity, which includes but is not limited to ASD, and autism itself are diverse, specific, individual, and widely varying. The neurodiverse and autistics of this world contain multitudes, and our lives are not well-represented in the media, fiction, or film. As a late-diagnosed autistic woman, I seek to destigmatize neurodiversity and to break down ableist barriers that view the neurodiverse and particularly autistics as less capable, human, and worthy of opportunity, independence, and love.
Autism Acceptance ā¤ļøšā¾
Today is āWorld Autism Awareness Dayā but Iām calling for Autism Acceptance. The world is āawareā weāre out there, but it has a long way to go in accepting autistic people, including them in representation & policy & initiatives for autism; destigmatizing accessibility needs, sensitivities, & challenging stereotypes that deny the profound spectrum nature of autism; & looking for autistic people as the experts on themselves.
While Iāve shared here before, I donāt often talk about the fact that Iām on the autism spectrum (ASD), my diagnosis aligning formerly with Aspergerās.
Do you know how I recognized that I was on the spectrumāwhat led me to seek and receive formal diagnosis?
I read a romance novel.
āDon't turn away. Keep your gaze on the bandaged place. That's where the light enters you.ā ā Rumi
August 4, my first #OwnVoices romance, Always Only You (Bergman Brothers #2) will be out in the world. Writing & publishing my first autistic character is both a pride & a vulnerabilityāitās not just gazing on my bandaged place but inviting you to gaze there, too.
AUTISM AWARENESS MONTH is almost over, but before it ends, I wanted to spend more time talking about autism in fiction & life. For this photo, I pulled the only romances about autistic people that I know of & support either as #OwnVoice stories or as well-researched, compassionate portrayals.
Iāve got only one problem with this tiny stack. I want more. More opportunities to broaden understanding & empathy in the transformative experience of reading.
I tried to read a book recently that purports to be about love featuring a woman with autism but wasnāt written by a woman with ASD. Could be that it was based off of someone the author knew but itās dangerous to rely on such narrow material as one person when youāre representing something as historically ill-understood and nuanced. If I had to narrow down my grievance with the womanās characterization here it is: it was a stereotype, jammed full of every type of social faux-pas and impulse control failing a person with autism might have, including portraying the woman as emotionless and callous, wrapped up in a bow of a damaging love triangle.
Itās Autism Awareness Day & for those who donāt know, Iām autistic! I was diagnosed a year ago & today Iām sharing my perspective in the hope of broadening understanding & empathy.
I think of autistics as bearers of the Mona Lisa Smile. Weāre among you, but not quite the same, carrying bittersweet mystery beneath our surface. Inside us is a sense that the world is counterintuitiveāwords arenāt literal, expressions confuse, noises startle & our soothing movements are considered āoddā. Inside some is tenderness for animals, in others a sense of patterns, in many solitude & unexplainable feeling. We canāt handle lots of relationships but we love deeply. When we love you we must learn youāthe meaning of your jokes & expressions, your behavior & tone, in the pursuit of loving intimacy.
Six months ago, weeks after I joined this platform as an author, I sat across the desk of an evaluating psychologist who told me what Iād known in my bones my whole lifeāIām different.
Specifically, I have autism. Autism Spectrum Disorder, which affects my ability to navigate the loud, crammed, social, subtle world through which Iāve been swimming upstream.
The moment he told me, I was relieved. I can only tell you that to go from a confused little girl who doesnāt understand why loud noises make her scream, why jump scares make her weep, why tags and seams feel like knives in her skin, why the need for a deep hard hug and no featherlight touch is who she is...
Resources
Here are some highly recommended autism resources endorsed and informed by the neurodiverse! Please take their critique of organizations, verbiage, and attitudes seriously, even if it makes you uncomfortable. As with any marginalized group, there are often nonrepresentative voices trying to speak for us. To make true gains in autism and neurodiversity acceptance and understanding, we must be given the platform, open ear, and respect we deserve to inform others:
- Autistic Women & Nonbinbary Network (AWN)
- Autistic Self Advocacy Network: Nothing About Us Without Us
- Autism diagnosis discrepancies between boys and girls explained (hint: itās socially upheld & medical gender bias, not genetics)
- Spectrum News: In particular, "The Cost of Camoflauging" and "Women with Autism Hide Complex Struggles Behind Masks"
- Healthline Article: "Why I Fake Being Normal"
- Child Mind Institute: "Why Do Many Autistic Girls Go Undiagnosed?"
- Fiction: The Kiss Quotient, The Bride Test, Act Your Age Eve Brown
- Nonfiction: 22 Things A Woman with Asperger's Syndrome Wants Her Partner to Know and Aspergirls: Empowering Female's With Asperger Syndrome. Also, Funny, You Don't Look Autistic. On my To-Read that looks promising: NeuroTribes